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December 2023  I  Volume 9  I  Edition 12

 AUCD Office News

 Image of a globe with a burst of lines.
Text: AUCD

AUCD Website Review Committee

AUCD is seeking applicants to join the Website Review Committee. The Website Review Committee will serve as an oversight role for the redesign of www.aucd.org. Committee members will work closely with the Marketing and Communications and Web IT teams to discuss the design and development of the website. Our goal is to ensure that the redesign is fully accessible and meets the needs of AUCD’s members and partners. Apply by Friday, December 29. 

 Image of a globe with a burst of lines.
Text: AUCD

Inaugural Meeting of AUCD's Migration & Disability Special Interest Group

During this year's AUCD Conference, Emerging Leaders: Shaping the Future, AUCD Network's newest Special Interest Group (SIG), the Migration and Disability SIG, held its inaugural meeting on the afternoon of Tuesday, November 7. Convened and chaired by Eva Weiss of Temple University, the group aims to address a gap in knowledge and expertise at the crossroads of migration and disability. 

Image of a woman smiling and pulling up her sleeve to show a Band-Aid on her arm. Text reads: You've fot this. We've got you. Aging & Disability Vaccination Collaborative powered by USAging.

The Association of University Centers on Disabilities Joins Vaccination Campaign Focusing on Older Adults and People with Disabilities

The Association of University Centers on Disabilities (AUCD) is excited to join the You’ve Got This campaign to vaccinate older adults and people with disabilities. Launched by the USAging-led Aging and Disability Vaccination Collaborative during cold and flu season, AUCD is part of a push to connect older adults and people with disabilities to COVID-19 and flu vaccines. This partnership is supported by the Administration for Community Living (ACL, U.S. Department of Health and Human Services (HHS)) through USAging as part of a financial assistance award to USAging totaling $74,999,835 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official view of, nor an endorsement, by USAging, ACL/HHS, or the U.S. Government.

2024 Annual Disability Statistics Conference

Vaccine Outreach Toolkit Update

AUCD has added new resources for winter COVID-19 and flu vaccine recommendations. Resources include graphics, drafted captions, and alt text. These resources are supported by the Administration for Community Living (ACL, U.S. Department of Health and Human Services (HHS)) through USAging as part of a financial assistance award to USAging totaling $74,999,835 with 100 percent funding by ACL/HHS. The contents are those of the author(s) and do not necessarily represent the official view of, nor an endorsement, by USAging, ACL/HHS, or the U.S. Government.

 Network News

Extra-axial cerebrospinal fluid (EA-CSF)
and perivascular space (PVS) segmentation on 24-month scan of a child who was diagnosed with autism. Credit: Dea Garic & Mark Shen.

Enlarged Spaces in Infant Brains Linked to Higher Risk of Autism, Sleep Problems

For the first time, researchers at the UNC School of Medicine's UNC Psychiatry, an AUCD Network Intellectual and Developmental Disabilities Research Center (IDDRC), discovered that infants with abnormally enlarged perivascular spaces have a 2.2 times greater chance of developing autism, compared to infants with the same genetic risk. 

Website screenshot of the Center for Transition to Adult Health Care for Youth with Disabilities.

Center for Transition to Adult Health Care for Youth with Disabilities Launches New Website

The Center for Transition to Adult Health Care for Youth with Disabilities, a national resource center funded by ACL's Administration on Disabilities (AoD), has launched a new website to help young people with intellectual and developmental disabilities (I/DD) direct their own transition to the adult health care system. The site also includes resources developed by Center partners, including the Institute for Human Development at University of Missouri-Kansas City and the Waisman Center at the University of Wisconsin-Madison. 

UI REACH, College of Education, The University of Iowa

University of Iowa REACH Virtual Classes to Help Substance-Exposed Children

UI REACH, a program for young adults with disabilities at the University of Iowa, is excited to announce two virtual courses that will be offered for the spring 2024 semester. The two courses that will be offered are "Social Skills in the Workplace" and "Healthier You." Classes will be held weekly with an instructor using an online platform. Students will be able to work collaboratively with their peers to achieve the class goals.

clip art of a ribbon. Text University of Maine SystemIncident Education PreK-12

Now Enrolling: Inclusive Education Pre-K-12 Micro-Credential

The University of Maine Center for Community Inclusion and Disability Studies (ME UCEDD) was part of a collaborative team of faculty and staff with expertise in inclusive education that has developed an Inclusive Education Pre-K-12 Micro-Credential with funding from a competitive 2022-2023 mini-grant awarded by the University of Maine System Micro-Credential Initiative.

ID Calender cover that has a colorful watercolor. Text 2024 Institute on Disability Calendar Celebrating Diversity through Art for 22
Years University of New Hampshire Institute on Disability

Now Available: The UNH Institute on Disability 2024 Calendar

The Institute on Disability's (IOD) annual outreach calendar features original artwork from 13 talented artists connected to our mission. This year's calendar continues our tradition of coupling each work with an inspirational quote reflecting the values of the IOD. Calendars are printed in full color; 11.75" x 11.75."

OHSU

OHSU UCEDD Releases New Plain Language Research Summary Page

Plain language summaries of research articles are important because they make complex scientific information easier to understand for everyone. By providing summaries that are accessible to a broader audience, research becomes more inclusive and useful. This can empower informed decision-making, improve communication, and bridge the gap between researchers and the public.

Kara Ayers a white woman with shoulder length hair wearing a blouse and slacks using a wheelchair in a office hallway.

UCCEDD Associate Director, Dr. Kara Ayers, featured in Women of Cincinnati Blog

The UCCEDD's Associate Director, Dr. Kara Ayers, was featured in the Women of Cincy blog. Dr. Ayers touches on disability, connection, and empathy, as well as highlighting the importance of how we can better care for one another.

Image of a black man citting at a informationa table for the Marlaynd Center for Developmental Disabilities at
Kennedy Krieger

MCDD Hosts Project SEARCH Intern

The Maryland Center for Development Disabilities (MCDD) recently hosted an intern from Project SEARCH at Kennedy Krieger Institute. Project SEARCH at Kennedy Krieger Institute is a 10-month transition program for individuals 18 through 24 years of age that provides hands-on job training through integrated worksite rotations, career exploration, innovative adaptations and mentoring from experienced staff. Its goal is for interns to use their internships skills to gain competitive employment.

Graphic of a group of people with a word
cloud that reads "Hear Me!"

Can You Hear Us Now? New Center Engages Adults with Disabilities in Health Research

The Ohio State University Nisonger Center is partnering with key stakeholders in the region and the nation to establish a Rehabilitation Research and Training Center (RRTC) to improve the health and function of people with intellectual and developmental disabilities (IDD). The U.S. Department of Health and Human Services’ Administration for Community Living just awarded a $4.4 million grant to fund a team of interdisciplinary researchers at the Ohio State Nisonger Center. They’ll conduct studies aimed at improving long-term health and quality of life for adults with IDD, including adults from racially and ethnically diverse backgrounds. 

 Emerging Leaders Voices

Adam Langenfeld. The logo for
Children’s Minnesota hospital is embroidered on his vest.

Lessons in Chemistry, and Advocacy

Adam Langenfeld (MN LEND 2019–20) studied chemistry and medicine, but when his baby was born prematurely, it helped solidify his interest in working with children with neurodevelopmental differences. He is now a developmental pediatrician at Children’s Minnesota hospital.

Libby Quinn, a light skin woman with wavy blonde and brown hair wears a turtleneck and smiles for a professional headshot in an
outdoor setting against cement terraced grass]

OHSU LEND-UCEDD Trainee Amplifies Community Priorities

Led by LEND Health Administration and Social Work Trainee Libby Quinn, OHSU Institute on Development and Disability opted to submit public comment as an organization on the recent proposed ruling for updates to Section 504.

AUCD Emerging Leaders Community

Open Leadership and Scholarship Opportunities for 2024

Deadline: January 1, 2024
Trainee Liaisons (TL's) are trainees at LENDs, DBPs, UCEDDs, and IDDRCs who volunteer to engage in information sharing and dialogue on trainee-related matters between their Program/Center, trainees at other AUCD member sites and the AUCD national office.  

AUCD Emerging Leaders Community

2024 EHDI Conference Scholarships for LEND Audiology Trainees

Deadline: January 31, 2024
AUCD is pleased to announce the availability of 8 scholarships of up to $500 each to support LEND audiology trainees in attending the Early Hearing Detection and Intervention (EHDI) Annual Conference on March 17-19, 2024.

 Opportunities

An older woman with white hair and glasses wearing a green
shirt and vest with a bandage visible under the collar. Text reads: People who acquire disabilities later in life tend to have poorer health and greater health care expenditures. You deserve to be heard. Take the 2023 National Survey on Health and Disability. kuhealthsurvey.org

National Survey on Health Insurance and Health Care Services

The University of Kansas Life Span Institute is conducting its 2023 National Survey on Health and Disability (NSHD), which collects detailed information from adults with disabilities in the U.S. and their experiences across a number of social, health, and employment issues. The purpose is to provide decision-makers with data that ensures a “nothing about us without us” philosophy. The goal is to reach people with disabilities from racial, ethnic, religious, geographic, and LGBTQIA+ groups typically underserved or poorly served by disability systems.

Two men giving eachother a high five with two people looking on.

Youth Equity Ambassador Program

New Leadership Opportunity for Youth with Disabilities - The National Center for Disability, Equity, and Intersectionality is currently accepting recommendations for Youth Equity Ambassadors. The National Center for Disability, Equity, and Intersectionality is part of the University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD).

Colorfully painted background with
PROMOISE IDD drawn across.

PROMISE-IDD Study Seeking Community Advisory Board Members

Policies for Reproductive Outcomes in Medicaid–Improving Services for Enrollees with Intellectual and Developmental Disabilities (PROMISE-IDD) are recruiting providers and community members for our study’s advisory board. The Community Advisory Board (CAB) will include people with intellectual and developmental disabilities who have experienced pregnancy and the health professionals that work with them. We want to learn about experiences with pregnancy care and incorporate those perspectives and expertise for feedback and guidance on our research project. 

 Upcoming Events

Graphic of sun and ocean.

39th Annual Pacific Rim International Conference on Disability and Diversity

February 24-28, 2024, In-Person w/ Virtual Option

Hosted by the Center on Disability Studies (CDS), College of Education, University of Hawaiʻi at Mānoa since 1988, Pac Rim has evolved into an international Conference that has welcomed thousands of presenters and attendees from across Hawaiʻi, the nation, and the world. 

iTAC - A project of AUCD to support Autism
CARES program

LEND Lived Experience Virtual Summit

March 4-5, 2024 via Zoom
We are excited to announce the date for the LEND Lived Experience Summit! The LEND Self-Advocate Discipline Network and LEND Family Discipline Network voted to join forces for future summits to showcase the work and best practices in both LEND disciplines. The proposal submission deadline is Monday, January 14, 2024. Click here to submit a proposal.

Disability Policy Seminar AAIDD, ASA, AUCD, NACDD, SABE The Arc, UCP

The Disability Policy Seminar 

April 8-10, 2024, Washington, DC

The Disability Policy Seminar offers the opportunity for passionate advocates, self-advocates, experts, and professionals in the field to come together and learn about key issues that affect them most.

LifeCourse Nexus Training and Technical Assistance Center

8th Annual Charting the LifeCourse Showcase 

April 23-25, 2024, Kansas City, MO

Come together with the network of advocates, families, and professionals to explore how CtLC weaves together personal growth, community engagement, policy advancements, and technological innovations to promote self-determination and good lives for all.

National Center for START Services, Institute on Disability, University of New Hamshire

2024 START National Training Institute 

May 6-8, 2024, Philadelphia, PA

The START National Training Institute (SNTI) is an annual, in-person training event hosted by NCSS that brings together hundreds of START team members, self-advocates, families, and national & international leaders in the field of IDD-MH to share expertise, tools, and best practices. 

  Submissions

Items may be submitted for consideration via the AUCD Public Promotion Page. Submissions are due by the second Friday of the Month.

AUCD | 1100 Wayne Avenue, Suite 1000 | Silver Spring, MD 20910

This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.


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