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March 27, 2024
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Announcements
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2024 Annual Disability Statistics Conference: Surveys, Statistics, and Identity
Thursday, March 28, 2024, 11:00 AM – 4:30 PM ET, Online
The Center for Research on Disability will be releasing the Annual Disability Statistics Collection, which fills critical gaps in national, state, and historic data related to people with disabilities by synthesizing complex data from numerous U.S. federal agencies into accessible formats. The Conference will also include two sessions addressing the latest in disability statistics, including survey methods and how disability is defined in national surveys. Note: In-Person registration is closed. Online registration will remain open.
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Seeking Nominations: Emerging Leader Board Member
Deadline: March 29, 2024
The AUCD Board of Directors is seeking nominations from the network's Emerging Leader community to fill the Emerging Leader Board Member voting position on the Board. (*Note that this is not the same as the Emerging Leader Intern.) The Emerging Leader Board Member will be a voting member on AUCD's national Board of Directors and represent the Association and broader
AUCD network. This position will bring the voice and perspective of the AUCD Emerging Leader Community, including but not limited to trainees and early career professionals in the network.
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Present at AIR-P Research Day this Summer
Deadline: April 1, 2024
The Autism Intervention Research Network on Physical Health (AIR-P) is pleased to launch this call for poster presentations at the semi-annual AIR-P Research Day at Autism CARES 2024 Meeting. This event will be held on July 22, 2024, as part of the virtual Autism CARES 2024 Meeting (via Zoom). The event is an opportunity to present research on the physical health and overall well-being of autistic individuals. We are especially interested in work that demonstrates the translation of research to community impact.
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New Grassroots Advocacy and Action Coalition (NAAC) Recruiting Advocates and Family Leaders
Application: April 15, 2024
As part of AUCD’s workplan, we are recruiting three disability leader advocates (self-advocates) and three family leaders to help build awareness of activities to improve access to HCBS and engage in leadership opportunities. These individuals will be identified through a competitive application process and will be compensated directly for their time. They will work with AUCD’s Home and Community Based Services (HCBS) Special Interest Group (SIG), a core workgroup (stakeholder engagement, knowledge translation, and quality) and with their UCEDD and/or LEND program to spread information about the work of the NAAC. Applications must be received by April 15th. The project starts May 1 and ends September 30, 2024. Please apply at this link, and reach out to Sarah Swanson (sarah.swanson@unmc.edu) for any questions.
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Call for Comments: FDA Proposal To Ban Electrical Stimulation Devices for Self-Injurious or Aggressive Behavior
Deadline: May 28, 2024
The Food and Drug Administration (FDA, the Agency, or we) is proposing to ban electrical stimulation devices (ESDs) intended for self-injurious behavior (SIB) or aggressive behavior (AB). FDA has determined these devices present an unreasonable and substantial risk of illness or injury that cannot be corrected or eliminated by labeling. This proposal follows a court decision vacating a prior ban and amendment to the Federal Food, Drug, and Cosmetic Act clarifying our authority to ban a device for one or more intended uses. This action, if finalized, will mean ESDs for SIB and AB are adulterated and not legally marketed.
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The AUCD
Employment page focuses on job and fellowship opportunities at AUCD, within our Network, and at organizations affiliated with AUCD. If you think your organization is an affiliated partner, please contact Anna Costalas. Positions will remain on the website for 90 days.
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Funding
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Deadline: May 24, 2024
Award Ceiling: $875,000
The purpose of the RRTCs, which are funded through the Disability and Rehabilitation Research Projects and Centers Program, is to achieve the goals of, and improve the effectiveness of, services authorized under the Rehabilitation Act through well-designed research, training, technical assistance, and dissemination activities in important topical areas as specified by NIDILRR. These activities are designed to benefit people with disabilities, family members, rehabilitation service providers, policymakers and other research stakeholders. The purpose of this particular RRTC is to conduct research, training, technical assistance, and related activities to contribute to improved employment outcomes of adults with Serious Mental Illness.
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Deadline: May 24, 2024
Award Ceiling: $875,000
The purpose of the RRTCs, which are funded through the Disability and Rehabilitation Research Projects and Centers Program, is to achieve the goals of, and improve the effectiveness of, services authorized under the Rehabilitation Act through well-designed research, training, technical assistance, and dissemination activities in important topical areas as specified by NIDILRR. These activities are designed to benefit people with disabilities, family members, rehabilitation service providers, policymakers and other research stakeholders. The purpose of this particular RRTC is to conduct research, training, technical assistance, and related activities to contribute to improved employment outcomes among youth and young adults with serious mental health
conditions.
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Deadline: May 24, 2024
Award Ceiling: $500,000
The purpose of the Disability and Rehabilitation Research Projects (DRRP) is to plan and conduct research, demonstration projects, training, and related activities, including international activities, to develop methods, procedures, and rehabilitation technology that maximize the full inclusion and integration into society, employment, independent living, family support, and economic and social self-sufficiency of individuals with disabilities, especially individuals with disabilities who have the greatest support needs, and to improve the effectiveness of services authorized under the Rehabilitation Act of 1973, as amended (Rehabilitation Act). Under this particular DRRP priority, the grantee must conduct research toward maternal health services or
interventions to improve pregnancy outcomes among women with long-term disabilities.
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Deadline: August 15, 2024
Award Ceiling: $660,000
The FY24 ARP Career Development Award supports early-career, independent investigators and/or the transition of established investigators from other research fields to conduct innovative, high-impact ideas or early-phase, proof-of-principle clinical trials with the potential to have a major impact on ASD. Applications are strongly encouraged to address one of the FY24 ARP Career Development Award Areas of Interest or provide justification that the proposed research addresses a critical problem, question, or need in ASD. This award enables such investigators to compete for funding separately from investigators with established programs of ASD research. Previous experience in ASD research is allowed, but not required.
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Deadline: August 15, 2024
Award Ceiling: $3,280,000
The FY24 ARP Career Development Award supports early-career, independent investigators and/or the transition of established investigators from other research fields to conduct innovative, high-impact ideas or early-phase, proof-of-principle clinical trials with the potential to have a major impact on ASD. Applications are strongly encouraged to address one of the FY24 ARP Career Development Award Areas of Interest or provide justification that the proposed research addresses a critical problem, question, or need in ASD. This award enables such investigators to compete for funding separately from investigators with established programs of ASD research. Previous experience in ASD research is allowed, but not required.
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Deadline: August 15, 2024
Award Ceiling: $660,000
The FY24 ARP Idea Development Award supports the development of innovative, high-risk/high-reward research that could lead to critical discoveries or major advancements that will accelerate progress in improving outcomes for Autistic individuals. Applications are strongly encouraged to address one of the FY24 ARP Idea Development Award Areas of Interest or provide justification that the proposed research addresses a critical problem, question, or need in ASD. This award mechanism is designed to support innovative ideas with the potential to yield impactful data and new avenues of investigation.
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Resources
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There is great diversity in the ways people communicate with one another. Many people with communication disabilities successfully use augmentative and alternative communication (AAC) to interact and connect with the world. AAC can be an app on a device for generating speech, gestures, or body language — or someone who repeats what a person is saying, typing, and spelling — to name just a few of the forms it can take. Too many people who could benefit from AAC do not have access to it. There are many reasons for this, including a lack of information and awareness about AAC tools and strategies and a lack of training and support in how to use AAC. There is enormous potential for more people to gain access to AAC; that’s why ACL is investing in a
collaborative, multiphase initiative to increase both awareness of and access to AAC. The new project, which is led by the Association of University Centers on Disabilities (AUCD), will focus on improving and maximizing peer learning to increase awareness and use of AAC. In collaboration with CommunicationFirst and the University Center of Excellence in Developmental Disabilities Education, Research, and Service (UCEDD) at Oregon Health & Science University (OHSU), AUCD will explore how peer to peer (P2P) models can be used to promote access to and increase the use of AAC.
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Researchers have discovered more than 275 million previously unreported genetic variants, identified from data shared by nearly 250,000 participants of the National Institutes of Health’s All of Us Research Program. Half of the genomic data are from participants of non-European genetic ancestry. The unexplored cache of variants provides researchers new pathways to better understand the genetic influences on health and disease, especially in communities who have been left out of research in the past. The findings are detailed in Nature, alongside three other articles in Nature journals. “All of Us values intentional community engagement to ensure that populations historically underrepresented in biomedical research can also benefit from future scientific discoveries,” said Karriem Watson, Chief Engagement Officer of the All of Us Research Program. “This starts with building awareness and improving access to medical research so that everyone has the opportunity to participate.”
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The challenges people with disabilities experience when receiving health care services or participating in programs that promote health are monumental and can be overwhelming. Often multiple barriers make it extremely difficult or even impossible for people with disabilities to access and effectively receive healthcare. This Public Health Live will provide a background on overall health for people with disabilities, describe barriers faced by people with disabilities, and address how small changes within a provider’s office, engagement with patients, and collaboration with partners can improve healthcare for people with disabilities. Specific focus is placed on people with intellectual and/or developmental disabilities.
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The National COVID-19 Resiliency Network (NCRN) is
the only partnership addressing the COVID-19 response in diverse racial and ethnic communities and communities including people with disabilities. NCRN’s app provides shareable resources about current COVID-19 research, health tips, and a Support Finder tool that can identify available resources near you. Find a location near you for your next shot and more resources using NCRN’s Support Finder on the app. Download on Apple and Android devices.
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This supplement is a companion to the Government Accountability Office (GAO) report entitled Autism Research and Support Services: Federal Interagency Coordination and Monitoring Efforts Could Be Further Strengthened, GAO-24-106446. The purpose of this supplement is to provide an "Easy Read" version of the report. Easy Read is a way some groups make their written information easier to understand. For example, Easy Read documents use short sentences and plain language.
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A new Office of Disability Employment Policy (ODEP) resource centralizes practical guidance, policy information, and evidence-based practices that can advance competitive integrated employment (CIE) for people with disabilities. Comprising resources from multiple federal agencies, the CIE Transformation Hub categorizes information by audience, with separate sections for individuals and families, employers, employment service providers, and state agencies.
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Weekly news items may be submitted for consideration via the AUCD Promotion Request Form.
Submissions are due on Monday each week.
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AUCD | 1100 Wayne Avenue, Suite 1000 | Silver Spring, MD 20910
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This weekly newsletter is in part supported by the Administration for Community Living (ACL) through a technical assistance contract for the URC, the Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.
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