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July 2023 I Volume 8 I Edition 7
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Each year, AUCD recognizes people, programs, and organizations for their leadership and contributions to the disability community. AUCD invites you to nominate someone who inspires you in the spirit of this year’s theme, Emerging Leaders: Shaping th Future. Nominate a leader by August 4th!
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AUCD is excited to announce (3) openings for the AUCD Emerging Leaders Internship and (5) openings for Council Trainee Representatives. Applications for the 2023-2024 academic year are now open and close on August 4th.
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AUCD is currently seeking nominations for the following positions to the AUCD Board of Directors, for a three-year term beginning in November 2023: Two (2) At-Large members. All nomination forms are due by COB on Friday,
September 1 to Liz Schneider at eschneider@aucd.org.
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Dr. Dan (Dalun) Zhang has accepted the Associate Dean for Faculty Affairs position in our School of Education and Human Development. Since accepting the interim role in January, Dr. Zhang has excelled in serving the best interests of our faculty and our School.
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CARD annually selects a few community members to recognize those who go above and beyond with their dedication and commitment to the community. This year’s winner is our very own Shelly Baer. Her dedication and commitment embody the essence of what the Mailman Center is all about.
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AIR-P is excited to promote and share our recently launched Channel on Cureus, Autism and Health: Across the Lifespan. https://www.cureus.com/channels/airp#. For any of you that may have research findings ready for dissemination, please consider this channel on Cureus, and reach out to us at AIRP@mednet.ucla.edu for assistance.
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The University of Hawaiʻi at Mānoa's Center on Disability Studies, in the College of Education, is accepting presentation proposals for the 39th Annual Pacific Rim International Conference on Disability and Diversity, February 27-28, 2024 in Honolulu, Hawaiʻi. Submissions are being accepted until October 1, 2023.
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Iowa's Center for Disabilities and Development (CDD), which is based at UI Health Care, participated in the event as the Family Reunification Center, the primary location for families and patients to be reunited. CDD is home to Iowa's tertiary-level evaluation and diagnostic clinics, Iowa's UCEDD and LEND program, and the Hawk-IDDRC.
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Librarians at the University of South Carolina School of Medicine (SOM) and at the Center for Disability Resources (CDR) Library have installed six Little Free Libraries around the state within rural and/or underserved communities to promote better access to quality, consumer-health resources related to each of the collaborating agencies’ missions.
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“Is this Heaven?” No, it’s the Iowa National Summer Transportation Institute (INSTI)! The Center for Disabilities and Development, Iowa’s UCEDD, recently hosted the third annual INSTI STEM summer camp. For the first time, INSTI was held residentially this summer.
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UCEDD director Dr. David Rotholz participated in an invitation only meeting at the White House in May 2023. This event was to discuss innovative ways federal funding can be used to improve the lives of South Carolinians, including those with disabilities.
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The Waisman Center's University Center for Excellence in Developmental Disabilities (UCEDD), in partnership with the Wisconsin Board for People with Developmental Disabilities, recently supported a grant to Parent University to help increase outreach and access to COVID-19 vaccines for individuals of color and individuals with disabilities in the greater Milwaukee area.
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The "I Generate Rural Opportunities for Work" (iGROW) Project is a four-year pre-employment and leadership-training program in partnership (funded by) with TWC's Vocational Rehabilitation Program, for students with disabilities who are currently enrolled in middle school and high school (ages 14-22).
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The Center for Rehabilitation Outcomes Research at Shirley Ryan AbilityLab launched INside the OUTcomes: A Rehabilitation Research Podcast in March. Episodes feature research on employment and people with disabilities, home and community-based services and research highlights from the Center. Listen on Spotify or Apple Podcasts.
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Tying shoes and practicing handwriting don’t sound like the typical summer camp activities. But the Munroe-Meyer Institute’s Occupational Therapy Summer Camp focuses on those skills, among others, while offering fun and enriching activities for children and young adults to promote and maintain school readiness and learn new skills with health and safety in mind.
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The Summer session for the PATHS Program included cooking classes. Students shopped for the ingredients and worked together in the Hullabaloo dorm kitchens to prepare the meals to share. For many students this is their first time away from home, so the students worked hard and had a great time with different art activities focused on improving their self-advocacy skills.
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The first drug to treat the symptoms of Rett syndrome was recently approved, following a Nature Medicine study publishing results from the pivotal phase 3 LAVENDER study led by investigators from the Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) to evaluate efficacy and safety of trofinetide.
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The iGROW Program with the Center on Disability and Development at Texas A&M University is growing in Lee County and in East Texas! The iGrow team is excited for their first replication in East Texas. Team members participated in the iGrow Summer Institute and a Program Coordinator for East Texas has been hired.
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The University of Tennessee Health Science Center (UTHSC) LEND program has partnered with Le Bonheur Children’s Hospital, The University of Memphis, and others to launch All Kids Academy. All Kids Academy is an innovative program that supports learning and development for hospitalized children with the goal to nurture every child's educational potential in sickness and in health.
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Mental health is import for individuals with intellectual and developmental disabilities. The Waisman TIES (Training, Intervention, and Evaluation Services) Psychiatric Clinic is a unique resource that provides psychiatric care and consultation to Wisconsin residents with intellectual and developmental disabilities.
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Joshua ISD’s work-based learning project recently created balloon centerpieces that were featured at two end of the school year events. They provided decorations for the annual HOSA banquet and the district end of year banquet. Joshua’s WBL project creates a variety of balloon center pieces and other balloon party decorations.
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In 2022, teams were formed by the NYMAC (New York, Mid Atlantic and Caribbean) Regional Genetics Center in each of their region's states/territories to look at barriers faced by families seeking genetics testing such as limited genetic clinics, lack of genetic counselors and costs of genetic testing.
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Wrapping up her fellowship this spring with the Minnesota Leadership in Neurodevelopmental and Related Disabilities (MNLEND) program, Agnes Cole was also juggling an administrative role at an area service provider and running her own non-profit organization dedicated to supporting people with disabilities to access services. Cole spent much of her fellowship working on a longitudinal study that tracks the living arrangements of people with intellectual and developmental disabilities who receive services.
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On June 15, I (Jason Folger, PhD) had the pleasure of re-convening nearly all of the panelists and speakers from the NE Regional Spring LEND Conference of May 8: When it Comes to Autism, Can We Reconcile the Medical and Social Models of Disability?
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The U.S. Department of Labor (DOL) and its federal agency partners invite you to participate in the "Our Future Matters: Informing the Federal Interagency Strategy" national online dialogue. Join this important conversation by visiting the dialogue now through August 14.
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Deadline: August 31, 2023
The Review of Disability Studies: An International Journal, the peer-reviewed, open access journal published by the Center on Disability Studies at the University of Hawai'i at Mānoa, is seeking submissions for a special issue exploring stories of the Global South through a decolonial and anti-ableist lens.
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August 7-8, 2023, Virtual
The Wyoming Institute for Disabilities will host a two-day virtual training specifically for UCEDD and LEND organizations interested in launching a Project ECHO network. The training will be held virtually via Zoom August 7-8, 2023 and will provide comprehensive knowledge about the ECHO model, including operations and best practices, for implementation.
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August 27-31, 2023, Hybrid
The Home and Community-Based Services (HCBS) Conference is ADvancing States' national conference that annually brings together state, federal, and local policymakers as well as leaders who administer, manage, and deliver waiver and other HCBS programs.
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Tuesday, September 19, 2023, Virtual
The conference brings national speakers to present on the latest research and practice related to addressing and reducing socially determined health disparities. The Room to Grow conference provides continuing education credits, and features interactive seminars for trainees, residents, students, faculty, administrators and community members.
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October 27-29, 2023, Overland KS
The purpose of the SOAR Conference is to bring together self-advocates with intellectual and developmental disabilities from around the Midwest to exchange ideas and learn from each other about advocacy.
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November 5-8, 2023, Washington, DC
The AUCD 2023 Conference will be held November 5-8 in Washington, DC. This year’s theme of Emerging Leaders: Shaping the Future recognizes and focuses on the thousands of Emerging Leaders that we welcome to the AUCD Network each year and how they continue to propel our Network forward, positively shaping the future. Save the date and stay tuned for more updates via the Conference site.
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AUCD | 1100 Wayne Avenue, Suite 1000 | Silver Spring, MD 20910
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This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.
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