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October 2024  I  Volume 10  I  Edition 10

   AUCD Office News

Five conference attendees standing arm in arm in front of bannner that says AUCD.

AUCD 2024 Conference: Registration Closes Today!

One week to go! We look forward to welcoming AUCD Network members, trainees, family members, partners, and other members of the disability community to Washington, D.C. to learn and grow together during this year's AUCD Conference.

Image of a provider, a white female with blonde hair, holding a touch screen up for a young white child to look at, behind them a white female with dark hair crouches down and smiles through the door.

2024 AUCD Elected Board Members

On behalf of AUCD President Derrick Willis, AUCD is pleased to announce the newly elected members of the Board of Directors. These new members will begin their three-year term after the passing of the gavel during the Closing Plenary at the AUCD 2024 Conference. Congratulations, all!

An image of Samuel Habib smiling in his wheelchair wearing a Red Sox jersey. Above is a blue header with white text that reads "The Ride Ahead AUCD Network Sneak Peek Screening. Tuesday, October 1st, 1-3pm ET, Virtual." At the bottom of the image are the co-hosts logos, the Westchester Institute for Human Development and the Association of University Centers on Disabilities.

Augmentative Alternative Communication Awareness Month 2024

It's Augmentative Alternative Communication (AAC) Awareness Month! This October, we asked AUCD Centers across the country to share the work they are doing to support AAC and AAC Awareness Month. Check out the stories below for an inside scoop into seven Center activities in AAC!

   Network Recognitions

Dr. Walton, a black woman wearing a dress and holding an award in front of a banner.

Jennifer Walton, MD, MPH, FAAP Receives 2024 Society for Developmental Behavioral Pediatrics (SDBP) Mid-Career Award

Dr. Walton was selected from a review of five national nominees and received the award at the annual conference in Washington, D.C. The award recognizes a mid-career member of the Society for Developmental and Behavioral Pediatrics (SDBP) making any combination of significant contributions in research, clinical service, teaching/education, and advocacy (for children and/or for the field of DBP).

Robin Miller, A white woman with shoulder length hair wearing a red blouse.

Ms. Robin Miller's Impact on Disability Employment and Transition Services

Thank you to Ms. Robin Miller who has agreed to take on additional leadership duties to assist the CDD Director and Interim Associate Director with daily operations of the CDD and program oversight, including serving as the lead for several training and outreach programs and as the CDD representative to various partners. She also coordinates activities for the Constituent Advisory Committee (CAC).

A headshot of Tazia Miah. She is wearing a dark scarf, glasses, and a jacket, smiling in an outdoor setting.

Michigan Public Health Institute Spotlights MI-DDI Research Technician

Tazia Miah is a research technician at the Michigan Developmental Disabilities Institute (MI-DDI) at Wayne State University and a current graduate student at Wayne State’s School of Medicine. She was recently recognized by the Michigan Public Health Institute (MPHI) for her support of their Anti-Oppression Leadership Team (AOLT) Executive Committee and for fostering anti-oppression initiatives within the Office for Anti-Oppression Strategy and Internal Solutions (OASIS) partnerships.

Dr. Sarah A. Nagro, A white women with long brown hair. She is wearing a blouse and jacket.

The Center on Disability and Development Announces Interim Associate Director, Dr. Sarah Nagro

Dr. Sarah A. Nagro is joining Texas A&M University as an Associate Professor of Special Education and previous Director of the Interdisciplinary Center for Research and Development in Teacher Education (RITE) and the Principal Investigator of the Virginia Department of Education’s Region Four Training and Technical Assistance Center at George Mason University.

   Network News

Project ECHO® professionals meet regularly in person and virtually. Pictured from left to right, the in-person staff members are Jessica Simacek—who led the Department of Defense study and directs ICI’s TeleOutreach Center—and researchers Adele Dimian and Andrea Castillo.

Expanding Access for Rural, Highly Mobile, and Military-Connected Families

Wait times for intervention services to help military families and those living in geographically dispersed areas who have developmental, emotional, or behavioral health concerns can stretch up to three years, and in large states with dispersed populations, long distances to care create more barriers. Researchers and clinicians from the Institute on Community Integration (MN UCEDD) and elsewhere are connecting with providers across Minnesota through a telehealth and tele-mentoring series for practitioners working with these groups.

UNMC Munroe-Meyer Institute

Vanderbilt Kennedy Center Researcher Leads Efforts to Design VR Training for Educators of Students with Autism

Children with autism are more likely than their typically developing peers to engage in challenging behavior, which can lead to injury, lower rates of social inclusion, and adverse effects on learning. To support these children, special education professionals in schools need training on functional analysis —the methods used to identify factors that influence challenging behavior. Joseph Lambert, Vanderbilt Kennedy Center (TN IDDRC, UCEDD, LEND) researcher and assistant professor of special education at Vanderbilt Peabody College of Education and Human Development, plans to develop this training using virtual-reality-based simulations.

UNMC Munroe Meyer Institute

The Munroe-Meyer Institute Receives $9.9 Million Grant from the U.S. Department of Education to Improve Job Access for People with IDD

The UNMC Munroe-Meyer Institute has received what is likely the largest grant in the organization’s history.  The $9.9 million grant from the U.S. Department of Education is designed to ensure individuals with disabilities between ages 14 and 24 have access to in-demand, good-paying jobs. “This is perhaps the biggest grant in the history of MMI, and it is life changing for the families we serve,” said Munroe-Meyer Institute Director Karoly Mirnics, PhD, MD. “It not only allows us to grow our services, but most importantly, expands employment services for individuals with disabilities in Nebraska.”

Children siting in a circle with adults that are holding a parachute over their heads

Utah State UCEDD Highlights Cache County MEICHV Program to Support Parents of Young Children with IDD

The Cache County MEICHV (pronounced Cache County MicVee) Program offers friendly home visits, family connection groups, and access to helpful resources throughout the community. It is for families with children from pregnancy up to age six, or entry into kindergarten. Cache County’s MIECHV is part of the Institute for Disability Research, Policy & Practice, located within the Emma Eccles Jones College of Education and Human Services at Utah State University. It is funded through the federal Maternal and Child Health Bureau.

The cover of "Impact: Employment and IDD," shows Katrina Simons, who uses a wheelchair, interviewing Dupree Edwards, an editor of this issue. They are sitting in a studio, speaking into microphones with film cameras focused on them. Both people are smiling.

New! Impact: Employment and IDD

The fall issue of "Impact" explores the movement to end subminimum wages paid to people with disabilities in group settings and offers strategies for boosting employment rates in the competitive job market. The launch of this issue coincides with National Disability Employment Awareness Month.

UW-Whitewater’s middle school Transition Perspectives event

The Wisconsin Integrated Transition Planning Project Facilitates Access to Resources for Youth with Intellectual and Developmental Disabilities to Plan for Adulthood

Individuals with IDD and their families may need some extra support or skill-building to help prepare for this transition and plan for the future, but even figuring out where to search for support might be an overwhelming task. The Wisconsin Integrated Transition Planning Project (WITPP) from the University Center for Excellence in Developmental Disabilities (UCEDD) at the Waisman Center aims to improve transition planning for Wisconsin youth with IDDs in an integrative manner by bringing together self-advocates, family members, and professionals who support them.

Eight Common Myths about Social Security Benefits - Myths 1 & 2 Supplemental Security Income (SSI) and Social Security Disability Insurance (SSDI) Emma barbato, Ewq, MS Kennedy Krieger

New Video Series Tackles Common Myths About SSI and SSDI Benefits

Project HEAL (Health, Education, Advocacy, and Law), a community-based program of the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute, created a new video series, "Eight Common Myths About Social Security Benefits." This resource aims to help individuals with disabilities and their families better understand the complexities of Social Security benefits, specifically SSI (Supplemental Security Income) and SSDI (Social Security Disability Insurance).

Amy Hewitt, a white woman with long brown hair wearing coral glasses and a blouse.

Reimagining Disability Services

Amy Hewitt, director of the Institute on Community Integration, challenged disability professionals to brainstorm bold ideas about community living and inclusion during the 2024 Reinventing Quality conference in Baltimore. 

Episode 132 - A Nurse’s Guide to the ADA: Understanding Responsibilities in Caring for Patients with Disabilities ADA LIVE Podcast

A Nurse’s Guide to the ADA: Understanding Responsibilities in Caring for Patients with Disabilities

Most healthcare providers and allied health professionals do not receive training to care for people with disabilities during their healthcare education. These challenges were focal points discussed on a recent episode of ADALive!, a podcast produced by the Southeast ADA Center. The discussion featured  Erin Vinoski Thomas, Director of the Center for Leadership in Disability and Research Associate Professor at Georgia State University's School of Public Health; Patricia Lawrence, Director of Project Healthy Grandparents and Clinical Assistant Professor at the Byrdine F. Lewis College of Nursing and Health Professions at Georgia State University; and Sydnie Smith, Disability & Health Project Manager at the Center for Leadership in Disability.

ATM PATHS Program

PATHS Program - Student Highlights

The PATHS Program is grateful to have some of the best Aggies to work alongside our students in an advising role. They support them in their academic pursuits and social-emotional well being, and without a doubt, their guidance and mentorship is very much appreciated and valued by both our staff and students.

Collage of twelve photographs. Text: AbleVoices Hall of Phame!

Vanderbilt Kennedy Center Announces AbleVoices Hall of PHame Art Display to Support Artists with Disabilities

This exhibit features AbleVoices photographs that have won ribbons during the past four summers at the Williamson County Fair Cultural Arts Photography Competition. AbleVoices Photography Club is a year-round program for teens (14+) and adults with and without disabilities led by Jen Vogus. Works are for sale and will be displayed through December 2024 at the Vanderbilt Kennedy Center.

   Emerging Leaders Voices

Dan Combs, MD, assistant professor in pediatrics and sleep medicine at the University of Arizona College of Medicine – Tucson’s Department of Medicine, holds his hand up to a young Down syndrome patient for a high five in an office."

ArizonaLEND Alum Dan Combs is Doing Amazing Work Assisting Young Down Syndrome Patients to Getting Good Sleep

October is National Down Syndrome Awareness Month, and Combs has dedicated his career to helping those diagnosed with the most common chromosomal condition in the United States. Each year, about 5,700 babies are born with Down syndrome in this country alone. 

Camp Connect participants and camp counselors take group photo

Jeremy Legaspi, ArizonaLEND Alum, Works to Engage AAC Users in Building a Wider Community

Speech-Language pathologists Jeremy Legaspi (ArizonaLEND Alum 2021-2022) and Wylanta Jones recently created Camp Connect, a camp designed for young people who use Augmentative and Alternative Communication (AAC) Devices. Jeremy described, “The goal is to create an inclusive and engaging environment where AAC users can build friendships, improve their communication skills, and connect with their community.”

   Opportunities

DDNJ Developmental Disabilities Network Journal

Call for Reviewers: Special Issue on Digital Accessibility from the Developmental Disabilities Network Journal

Please submit your information by November 8, 2024.
The Developmental Disabilities Network Journal (DDNJ) is an open-source academic journal focused on research and scholarship about disability systems and the value and impact of the Developmental Disabilities Network. The DDNJ is currently seeking reviewers for its Spring 2025 special edition on Digital Accessibility. They are looking for individuals with expertise in disability research, policy analysis, participatory action research, ADA and Section 504 compliance, and digital/web accessibility. The journal also welcomes reviewers who are individuals with developmental disabilities, siblings of individuals with disabilities, and/or parents of children with disabilities.

 A group of four people (left to right): an African man, an African American woman, a white American woman, and an African man posing for a group photo at the airport, smiling into the camera.

Launching Call for Host Application for Spring 2025 Professional Fellowship Exchange

Apply by January 31, 2025
Is your UCEDD or LEND eager to drive global change in disability inclusion? Host a Fellow from the prestigious Professional Fellows Program on Inclusive Civic Engagement (PFP)! The PFP supports mid-career disability rights professionals from East Africa to participate in a 5-week Fellowship in the US in Spring 2025. As a host, the PFP will match you with a Fellow whose interests align with your organization, fostering a powerful exchange of knowledge and practices in disability-inclusive civic engagement.

   Upcoming Events

AUCD 2024 Conference STRONGER TOGETHER Creating a More Inclusive World

AUCD 2024 Conference

November 3-5 (In Person) and November 6 (Virtual)

The AUCD Conference brings together more than 1,100 researchers, policymakers, practitioners, professionals, advocates, community leaders, and students. This annual event is designed to promote innovative thinking that will launch disability policy, research, and advocacy initiatives to the next level. With a theme of Stronger Together: Creating a More Inclusive World, this year's Conference focuses on the core of the AUCD Network, recognizing that collaboration is critical to advance the rights and opportunities for and with people with disabilities through research, training, education, and service. 

mage of mother with a chilld.

Virtual Professional Development Series: Supporting Children with Substance Exposures
During this three-part series, we’ll delve into the heart of health and education matters that impact children with prenatal substance exposure or those navigating the complexities of substance use disorders within their families. Our expert speakers will explore emerging trends, evidence-based practices, and innovative strategies. Whether you’re seeking clinical insights, educational approaches, or community advocacy tools, this series has something for everyone. Don’t miss out on this unique opportunity to expand your expertise and make a difference.

Grahic of palm springs and water. Text: Gatilinburg Conference 2025 San Diego, CA

Gatlinburg Conference
April 7-10, 2025, San Diego, CA

The Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities is one of the premier conferences for behavioral scientists conducting research on intellectual and developmental disabilities. It has a rich history that started in Gatlinburg, Tennessee in 1967, and the name of its original location remained. Each year, Gatlinburg Conference brings together scientists from around the world to gather to discuss research and collaborations in the field. Abstract submissions for the 2025 Gatlinburg Conference will be accepted until October 28, 2024.

   Submissions

Items may be submitted for consideration via the AUCD Public Promotion Page. Submissions are due on the second Friday of the month. AUCD 360 is promoted on the last Friday of the month. 

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This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.

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