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January 2025 I Volume 11 I Edition 1 |
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AUCD Leadership Academy
Applications close on Monday, March 3, 2025.
AUCD and the Center for Leadership in Disability (CLD) are proud to present the 8th Annual AUCD Leadership Academy. The AUCD Leadership Academy is a week-long intensive experience, paired with a year of pre and post interactions designed to enhance the skills of current and emerging leaders from disability networks to build coalitions to improve systems of supports and services. The Leadership Academy engages participants from UCEDDs, LENDs, IDDRCs and the wider community of disability partners to come together to immerse themselves for a week of study, shared experiences, self-evaluation, and skill development. |
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This year, the Institute for Disability Research, Policy & Practice’s WebAIM is celebrating 25 years of improving web accessibility. It's been an exciting two and a half decades of history in Utah State University’s Emma Eccles Jones College of Education and Human Services. Jared Smith, the current WebAIM director, has been with the organization for 24 of its 25 years. In that time, he has seen awareness of accessibility take off. |
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This year marks the 10th anniversary of the ABLE Act, a groundbreaking law that allows individuals with disabilities to save money in tax-advantaged ABLE accounts without affecting their eligibility for essential benefits like Medicaid or Supplemental Security Income (SSI). The University of Cincinnati Center for Excellence in Developmental Disabilities (UCCEDD) has a unique connection to this milestone: Anne Gerhardt, the daughter of UCCEDD's policy specialist Jane Gerhardt, was the first person to open a STABLE (Ohio's ABLE) account in the country. |
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Karen Hammar has been named Director of Iowa's Center for Disabilities and Development, home to Iowa's UCEDD, LEND Program, and IDDRC.
In November, Karen Hammar, MHA, MOT, OTR/L, FACHE, was named Director of the Center for Disabilities and Development (CDD), home base for Iowa’s UCEDD and LEND Program, the Hawk-IDDRC, and the Alfred Healy Clinic, where Iowans with disabilities receive a variety of clinical services. Hammar had served as CDD’s interim director since the beginning of 2024, while she continued to manage clinical operations. Throughout 2024, she led CDD through an eventful year, with a focus on unifying leadership and staff. |
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A new research project at the University of Kansas Life Span Institute will focus on increasing understanding of which premutation carriers will develop FXTAS during middle or later adulthood, and why. The hope is that this information will help prevent the disease or advance treatments when it is in its earliest stages. |
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The Michigan Developmental Disabilities Institute (MI-DDI) at Wayne State University recently received a $99,000 grant from the Robert Wood Johnson Foundation (RWJF) based in Princeton, New Jersey. MI-DDI’s awarded project will design, implement and evaluate a health equity training curriculum for primary care health professionals and trainees. The focus of the training will be on the intersection of disability and aging in communities of color. |
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This fall, the iGROW program completed a total of 181 Next Up lessons, experienced five field trips, participated in four enrichment activities, and held five parent trainings and three Project Advisory Committee meetings. The iGROW Central Texas cohorts were busy with field trips in November. |
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Children with disabilities (CWD) face a heightened risk of mental health challenges, demanding urgent attention. Despite the recognized significance of play for mental well-being, limited research explores the role of play, especially risky play, in CWD. This study investigates parental perspectives on risky play in CWD and its links to child playfulness, parent–child relationships, and problem symptoms. |
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RTC: Rural researchers present advice on collaborative and participatory research projects with Centers for Independent Living (CILs) based on work with CIL partners. The guide includes feedback and priorities from CIL staff on the most effective conditions to address when entering into a research partnership |
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The Center on Disability Studies at the University of Hawaiʻi at Mānoa's College of Education is delighted to announce the release of the following special issue of the Review of Disability Studies: An International Journal: "The 39th Conference Proceedings of the Pacific Rim International Conference on Disability and Diversity 2024." |
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In 2024, students with intellectual and developmental disabilities are more prepared and have more inclusive options for continuing their education after high school than ever before. ICI Think College staffers Meg Grigal, Clare Papay, and Caitlyn Bukaty co-authored a chapter in the International Review of Research in Developmental Disabilities with colleagues Sara Jo Soldovieri and Beth Myers from Syracuse University titled “Benefits of Postsecondary Education Experiences for Adults with Intellectual and Developmental Disability." |
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For the past 15 years, ICI has been publishing the Service Provider Promising Practices series, which illustrates how community rehabilitation providers implement best practices and improve integrated employment outcomes. The latest Promising Practice brief, "Rise: A Data-Driven Approach to Hire and Retain Staff," demonstrates how a Minnesota-based nonprofit, Rise, implemented new hiring and retention practices to target potential employees in untapped applicant pools. |
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A new data portal developed at the University of Minnesota’s Institute on Community Integration is pointing to some relief in the dire shortage of direct care workers who support people with disabilities in their daily lives. |
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In 2015, the Rural Institute for Inclusive Communities (RIIC) established the Community Investment Fund (CIF). CIF awards support innovative projects or programs that help Montanans with disabilities live, learn, work, and recreate alongside people without disabilities.
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Occupational therapist Alyssa Mason (MN LEND 2020-21) told educators, mental health workers, case managers, and others at a recent conference that young children who have experienced trauma may need help with sensory processing strategies in addition to mental health support. |
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PCORI's Advisory Panels
Applicant Town Hall: February 10, 2025, 3:00 - 4:00 PM ET
Application Deadline: March 7, 2025
One of the ways PCORI seeks to bring voices from across the healthcare community into our work is through our Advisory Panels. Learn about the panels' members, including their affiliations and short biographies, and how they help us review and prioritize critical research questions for possible funding. Learn more about the PCORI Advisory Panel at the Applicant Town Hall on February 10, 2025 from 3 - 4 PM ET. |
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Inclusive Higher Education: HDI Seminar Series
February 14, 2025, 1:00 – 3:00 PM ET
This panel will provide an overview of the Kentucky Supported Higher Education Partnership (KSHEP). KSHEP is a network of colleges and universities offering inclusive postsecondary educations programs for students with intellectual and developmental disabilities. During the panel, some current and former students will share about their experiences and why inclusive postsecondary programs are important. View Flyer. |
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Amplifying Voices of Disability
Thursday, February 27, 2025, 11:00 AM - 6:30 PM ET
Hosted by the Institute for Human Development (IHD) at Northern Arizona University, Amplifying Voices of Disability is a virtual day of learning focusing on timely, hot-button issues from the point of view of those with lived experience of disability. |
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The Spectrum of Developmental Disabilities XLVI: The Many Flavors of ADHD
March 17-19, 2025, 8:30 AM - 4:15 PM ET
This multidisciplinary, three-day conference will focus on The Many Flavors of ADHD. It will address the diagnosis and management of ADHD across the lifespan and across varied clinical populations. The conference will also address the underlying neurobiology of ADHD and wide-ranging public health implications. |
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Disability Policy Seminar
April 7-9, 2025, Washington, D.C.
The Disability Policy Seminar is the premier opportunity to cultivate support on Capitol Hill and amplify the concerns of people with intellectual and developmental disabilities (IDD) before Congress. The seminar brings together passionate advocates, including people with disabilities, experts, and professionals in the field, to learn about key issues and advance the grassroots movement for people with IDD. |
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Gatlinburg Conference
April 7-10, 2025, San Diego, CA
The Gatlinburg Conference on Research and Theory in Intellectual and Developmental Disabilities is one of the premier conferences for behavioral scientists conducting research on intellectual and developmental disabilities. It has a rich history that started in Gatlinburg, Tennessee in 1967, and the name of its original location remained. Each year, Gatlinburg Conference brings together scientists from around the world to gather to discuss research and collaborations in the field. |
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Charting the LifeCourse Showcase 2025
April 29 - May 1, 2025, Kansas City, MO
During the sessions, people who use Charting the LifeCourse (CtLC) Framework, family members, and professionals will share practical solutions and strategies for using CtLC in their daily lives and across many levels of change. Sessions will provide hands-on learning opportunities or direct application and encourage collaboration. |
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Items may be submitted for consideration via the AUCD Public Promotion Page. Submissions are due on the second Friday of the month. AUCD 360 is promoted on the last Friday of the month.
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AUCD | 1100 Wayne Avenue, Suite 1000 | Silver Spring, MD 20910 |
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This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC and the Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred. |
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