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September 2023 I Volume 8 I Edition 9
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Whether you're a newcomer to the field or a seasoned professional, the AUCD Conference provides countless opportunities to share with and learn from colleagues and peers. This premiere event features four engaging large group plenaries from high-level leaders, more than 220 concurrent and poster presentations covering a broad spectrum of disability topics, as well as innovative research, programming, and advocacy efforts. Register by October 27! For questions about accommodations during the event, please email Liz Schneider at accommodations@aucd.org.
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We are excited to share AUCD's new brand guidelines! The brand guidelines include information about the AUCD brand, our new logo and colors, how to ensure accessibility across platforms, and more. We hope that you use the guidelines as a resource on how to promote the brand and how to engage people about the work of the AUCD Network. Please make note of the updated logo and color changes and update your Center's/Program's web pages and other materials accordingly.
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Check out the Think College blog from AUCD’s Caroline Jurisich, “What Happened During the States’ Legislative Sessions?”
The article discusses progress made this year with new laws and how you can be involved in making a difference in disability legislation for inclusive postsecondary education.
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The ExceLens series highlights the valuable work of the UCEDDs within university systems, the community, and in the lives of people with disabilities across the lifespan and their family members. The dental program at The Ohio State University (OSU) Nisonger Center opened in 1971 as a program initially designed to care for children with intellectual and developmental disabilities.
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The Wyoming Institute for Disabilities (WIND), an academic unit of the College of Health Sciences, is honored to have been awarded an inaugural ECHO Excellence Award for the University of Wyoming Project ECHO. WIND was recognized in September at the 2023 global MetaECHO Conference held at the University of New Mexico in Albuquerque. The ECHO Excellence Awards recognize outstanding ECHO teams from around the world for their contributions to the ECHO global community.
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Austin Nugent has built bridges between many different parts of the disability community, and she’s about to put those connections to use. Nugent, who is a Disability Program Administrator at HDI, has been named an At-Large member for the National Disability Rights Network’s (NDRN) Board of Directors. That means that she’ll help provide oversight to an organization that protects and advocates for people with all sorts of disabilities nationwide, focusing on ensuring that people’s rights are protected.
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In 2020, Kentucky Governor Andy Beshear signed an executive order to create the Kentucky Employment First Council, which helps people with disabilities find meaningful employment. Morgan Turner, HDI Project Assistant, has accepted a position as Vice Chair on that council.
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Gunner Brooks has been named self-advocacy coordinator at The University of Southern Mississippi Institute for Disability Studies (IDS) Gulf Coast offices. Gunner is the second employee to serve in this role at IDS and the first on the coastal campus. This position highlights IDS' commitment to promoting self-advocacy in Mississippi with a focus on youth and young adults.
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First documented two decades ago among a small group of men who had grandchildren with Fragile X Syndrome, Fragile X-associated Tremor/Ataxia Syndrome (FXTAS) has more recently been identified in women. Researchers at the University of Kansas Life Span Institute (Kansas IDDRC) and colleagues now are working to learn more about its effects in women.
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Is your UCEDD or LEND eager to drive global change in disability inclusion? Host a Fellow from the prestigious Professional Fellows Program (PFP)! The PFP supports mid-career disability rights professionals from Kenya, Tanzania, Uganda, and Ethiopia to participate in a five-week Fellowship in the US in Spring 2024. As a host, we will match you with a Fellow whose professional interests and goals align with your organization to exchange disability-inclusive civic engagement knowledge and practices.
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Nationwide, just over 19 percent of the Department of Education’s accredited institutions have taken advantage of a digital documents course developed at the Institute for Disability Research, Policy & Practice. Faculty and staff from all the universities in the Utah System of Higher Education have taken the course, which helps them provide accessible digital materials to their students.
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Informed by community members, including young people with intellectual and developmental disabilities (IDD), the REACH Lab and Institute on Disabilities at Temple University developed free and easy-to-access resources about how peer support can help with successful transition and research.
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The UCEDD at OHSU has implemented The Friendships and Dating Program, created by the University of Alaska Anchorage Center for Human Development, in Oregon for the past three years. With its growing success, the FDP has received a grant extension and will continue for another year.
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If you are considering starting a program or are in the early stages of program development, this guide is for you. A Planning Guide for New Inclusive Programs and Initiatives Serving College Students with Intellectual Disabilities by Cindi May aligns with the Program Accreditation Standards and structured around some critical questions developing programs will have, this guide includes information about common issues and challenges programs may face and resources to explore throughout the process of conceptualizing and creating a program for students with intellectual disability.
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In rural Africa, people with autism and other disabilities are stigmatized and routinely hidden indoors. This summer, the MN UCEDD trained community health workers in Rwanda on identifying the signs of autism in children and on principles for addressing the needs of people with disabilities in rural areas.
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For years, researchers at the MN UCEDD have estimated autism prevalence among Minnesota school children. Now the researchers are also estimating the prevalence of cerebral palsy, spina bifida, and muscular dystrophy.
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Incidence rates of newborns diagnosed with neonatal abstinence syndrome have rapidly increased in rural states as West Virginia continues to see a rise in opioid use and addiction, including pregnant women. For the past five years, the WVU Center for Excellence in Disabilities (WVU CED) has tested and implemented models of care to strengthen services for West Virginia families with infants born exposed to substances in utero or diagnosed with neonatal abstinence syndrome.
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Application Deadline Extended: October 6, 2023
AUCD is pleased to offer scholarships each year to support AUCD Emerging Leaders in attending the AUCD Conference. Scholarships are available to current trainees and former trainees presenting work conducted while a trainee.
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The Fannie Lou Hamer Leadership Program is a fully virtual 10-week program from October 10 - December 19. The program equips and engages young Black disabled individuals from ages 18-30 who want to grow as community organizers. We’re looking for our next cohort of leaders who are active and passionate about their communities, seeking professional development opportunities, that are team players, and innovative thinkers!
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Deadline: October 23, 2023
The 2024 Gatlinburg Conference continues its tradition as one of the premier conferences for scientists conducting research on intellectual and developmental disabilities. The University of Kansas Life Span Institute is excited to host another year of Gatlinburg Conference on April 17-19, 2024.
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Deadline: November 6, 2023
The Call for Proposals for the 2024 AMCHP Annual Conference is now open! We highly encourage those working in community organizations and tribal entities, family leaders, students, and early career professionals to share their completed (or in progress) work under any of 10 subject-focused tracks.
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Disability is a part of life for people in every community, but people with disabilities have not always been included in health research. The All of Us Research Program is trying to change that.
By joining All of Us, you can help researchers learn more about what may improve health for all of us.
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Friday, September 29, 2023, 1:00 - 5:00 pm ET
Join the Mailman Center for Child Development, (FL UCEDD/LEND) as they celebrate 50 years of innovation, impact, and connection. Hosted By F. Daniel Armstrong, Ph.D. Director, Mailman Center for Child Development.
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October 26-27, 2023, Virtual
For all conference participants, there will be a discussion of primary and subspecialty care medical care during the transition years; discussions of models of transition programs and data to support their processes; the legal issues involved in healthcare transition; family and young adult perspectives. In partnership with Baylor College of Medicine, AUCD is happy to offer all network members discounts on registration for the October 26-27 virtual conference.
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October 27-29, 2023, Overland, KS
The purpose of the SOAR Conference is to bring together self-advocates with intellectual and developmental disabilities from around the Midwest to exchange ideas and learn from each other about advocacy.
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November 5-8, 2023, Washington, DC
The AUCD 2023 Conference will be held November 5-8 in Washington, DC. This year’s theme of Emerging Leaders: Shaping the Future recognizes and focuses on the thousands of Emerging Leaders that we welcome to the AUCD Network each year and how they continue to propel our Network forward, positively shaping the future. Join us by registering today!
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February 28 - March 1, 2024, Washington, DC
The 2024 Texas Transition is moving to Houston for 2024/2025! We will be at the Royal Sonesta Houston Galleria. We look forward to having you join us, live or online, on February 28 - March 1, 2024. We will cap the live registration at 500 participants. Please note that the sessions will not be recorded.
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AUCD | 1100 Wayne Avenue, Suite 1000 | Silver Spring, MD 20910
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This newsletter is in part supported by the Administration on Community Living (ACL) through a technical assistance contract for the URC, Maternal and Child Health Bureau (MCHB) through a technical assistance contract for the ITAC, and Centers for Disease Control and Prevention (CDC) for a National Professional Organization for Persons with Developmental Disabilities. The content of this material does not necessarily reflect the views and policies of any federal agency. No official support or endorsement by federal agencies is intended nor should be inferred.
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